About Family-to-Family Health Information Centers
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Family-to-Family
Health
Information
Centers
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Helping
Families
of
Children
with
Special
Health
Care
Needs
in
Every
State
There
are
over
10
million
children
with
special
health
care
needs
(CSHCN)
in
the
US.
Brooke.JPG
Autin
adult
son
and
daughter.jpg
CSHCN
have
or
are
at
risk
for
chronic
physical,
developmental,
behavioral,
or
emotional
health
conditions.
Gercak
mom
and
son
on
boat.jpg
Families
of
CSHCN
must
navigate
complex
programs
and
services
to
obtain
health
care
needed
by
their
child.
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Family-to-Family
Health
Information
Centers
(F2Fs)
are
staffed
by
family
members
who
have
first-hand
experience
obtaining
health
care
for
their
CSHCN.
tiny
baby
and
mom.JPG
F2Fs
provide
free
help
to
families
and
the
professionals
who
serve
them.
Last
year,
F2Fs
responded
to
over
251,000
requests
for
assistance.
Flory
family.jpg
“I
can't
even
begin
to
thank
you
for
helping
us
navigate
this
tricky
process
(accessing
Medicaid)!
You
have
truly
been
another
one
of
the
angels
who
have
helped
us...”
-
A
family
in
Massachusetts
Photos
014.jpg
F2Fs
provide
information
and
training
at
workshops,
community
events,
clinics,
and
more.
Last
year,
F2Fs
trained
over
100,000
families
and
professionals
in
4,263
trainings
on
programs
and
services.
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“I
learned
how
important
it
is
to
prepare
adolescents
to
participate
in
their
health
care
…
to
support
their
parents
…
and
to
expect
health
care
providers
(to
do
the
same).”
-
A
provider
in
Nevada
F2Fs
value
cultural
competence.
Last
year
they
served:
·20%
Hispanics
·
35%
African
Americans
·
8%
Asians
·
2%
Pacific
Islanders
·
51%
Whites
·
4%
American
Indians/Alaskan
Natives
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In
helping
families,
F2Fs
provide
information
on
many
different
topics.
Last
year,
F2Fs
most
frequently
provided
information
on:
·
public
health
care
financing
·
family
support
·
cultural
competence
·
communicating
with
providers
·
care
coordination
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2009Conference
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F2Fs
partner
with
many
organizations
to
ensure
that
family
perspectives
are
included
in
program
and
policy
discussions.
Sadie
and
Amelia.JPG
Last
year,
on
average,
each
F2F
collaborated
with
16
state-based
and
11community-based
organizations.
“Through
the
F2F
involvement
…..ten
pediatric
practices
are
progressing
through
medical
home
certification
and
have
been
learning
the
value
of
parent
input
in
the
workings
of
the
practice.”
-
F2F
in
Nebraska
gallagher.jpg
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PICTURES\GOOD
PICTURES\Conleys
at
table.JPG
Over
80%
of
families
served
by
F2Fs
report
that
they
are:
·
more
confident,
·
better
able
to
navigate
services,
and
·
have
improved
communications
with
their
child’s
provider.
Ohlson-Martin
siblings.JPG
“We
assist
families
through
a
number
of
different
public
systems...
We
give
policy
personnel
a
true
picture
of
the
needs
of
families
through
data
and
by
having
families
share
how
systems
impact
their
lives.”
-
The
F2F
in
New
Hampshire
Feist
son
w
little
boy.JPG
The
Health
Resources
and
Services
Administration
(HRSA),
Maternal
Child
Health
Bureau
(MCHB)
funds
the
F2Fs
through
a
competitive
grant
process,
as
authorized
by
the
Affordable
Care
Act
of
2010.
Region
X
group
photo-1.jpg
To
learn
more
about
F2Fs
visit:
FAMILY
VOICES
National
Center
for
Family/Professional
Partnerships
www.fv-ncfpp.org
Special
thanks
to
Jim
Brickman
for
use
of
the
background
music,
Somewhere
Over
the
Rainbow,
from
his
album,
Unspoken.