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About Family-to-Family Health Information Centers
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Family-to-Family Health Information Centers coverslide7.jpg Helping Families of Children with Special Health Care Needs in Every State There are over 10 million children with special health care needs (CSHCN) in the US. Brooke.JPG Autin adult son and daughter.jpg CSHCN have or are at risk for chronic physical, developmental, behavioral, or emotional health conditions. Gercak mom and son on boat.jpg Families of CSHCN must navigate complex programs and services to obtain health care needed by their child. J:\Photos\FamilyVoices\2007Conf-3\DSC_0655.jpg Family-to-Family Health Information Centers (F2Fs) are staffed by family members who have first-hand experience obtaining health care for their CSHCN. tiny baby and mom.JPG F2Fs provide free help to families and the professionals who serve them. Last year, F2Fs responded to over 251,000 requests for assistance. Flory family.jpg “I can't even begin to thank you for helping us navigate this tricky process (accessing Medicaid)! You have truly been another one of the angels who have helped us...” - A family in Massachusetts Photos 014.jpg F2Fs provide information and training at workshops, community events, clinics, and more. Last year, F2Fs trained over 100,000 families and professionals in 4,263 trainings on programs and services. 022_22.jpg “I learned how important it is to prepare adolescents to participate in their health care to support their parents and to expect health care providers (to do the same).” - A provider in Nevada F2Fs value cultural competence. Last year they served: ·20% Hispanics · 35% African Americans · 8% Asians · 2% Pacific Islanders · 51% Whites · 4% American Indians/Alaskan Natives 04aian1-hi.jpg In helping families, F2Fs provide information on many different topics. Last year, F2Fs most frequently provided information on: · public health care financing · family support · cultural competence · communicating with providers · care coordination July2007 010.jpg 2009Conference 016.jpg F2Fs partner with many organizations to ensure that family perspectives are included in program and policy discussions. Sadie and Amelia.JPG Last year, on average, each F2F collaborated with 16 state-based and 11community-based organizations. “Through the F2F involvement …..ten pediatric practices are progressing through medical home certification and have been learning the value of parent input in the workings of the practice.” - F2F in Nebraska gallagher.jpg J:\Photos\FamilyVoices\GOOD PICTURES\GOOD PICTURES\Conleys at table.JPG Over 80% of families served by F2Fs report that they are: · more confident, · better able to navigate services, and · have improved communications with their child’s provider. Ohlson-Martin siblings.JPG “We assist families through a number of different public systems... We give policy personnel a true picture of the needs of families through data and by having families share how systems impact their lives.” - The F2F in New Hampshire Feist son w little boy.JPG The Health Resources and Services Administration (HRSA), Maternal Child Health Bureau (MCHB) funds the F2Fs through a competitive grant process, as authorized by the Affordable Care Act of 2010. Region X group photo-1.jpg To learn more about F2Fs visit: FAMILY VOICES National Center for Family/Professional Partnerships www.fv-ncfpp.org Special thanks to Jim Brickman for use of the background music, Somewhere Over the Rainbow, from his album, Unspoken.